Twin sisters Zoe Buxton and Lucy Fretwell, 26, have a one-in-two-million genetic condition that is slowly turning them to stone.
The pair from Ballymena, Northern Ireland, are one of just three twins worldwide known to have a condition, called fibrodysplasia ossificans progressiva (FOP), which causes their muscle and tendons to be replaced by bone.
Although their future is uncertain, both women are determined to remain positive and are even considering having children despite the risk their condition may be passed on.
Ms Buxton said: ‘We refuse to let our condition stop us from living life to the full.’
Ms Fretwell added: ‘It is difficult to stay positive, but it helps to have someone else going through the same thing as you.’
Twin sisters have a one-in-two-million genetic condition that is slowly turning them to stone